Raising Awareness - One Book At A Time

Online, June 17, 2011 (Newswire.com) - Contact Information
SL Clark, Publisher
Heart Press Publishing
1001 Bridgeway, #161
Sausalito, CA94965
Author: Pandora Poikilos
Email: pandorapoikilos@gmail.com

"A rare disease is any disease or condition that affects less than 200,000 persons in the United States or about 1 in 1,500 people" (National Organisation of Rare Disorders). Being diagnosed with Idiopathic Intracranial Hypertension (IH) in 2003, bestselling author Pandora Poikilos is now on a journey to raise awareness about various rare diseases one book at a time.

Her recent fiction novel - Excuse Me, My Brains Have Stepped Out is focused on dealing and living with a rare neurological disorder. A small amount of every book sold on Amazon will be donated to the National Organisation of Rare Disorders in a bid to aid research and further support those living with rare diseases.

Reviews received thus far include:
I realize my brains had actually stepped till the time I read Pandora Poikilos' "Excuse Me, My Brains Have Stepped Out." The irony in her book shatters the way you think and makes you wonder if you are the one with a brain condition! The humor, wit, realism, irony all get together to fix a hard blow on the normal functioning brain. Pandora Poikilos brings home the facts staring you in the face all this while and puts it in perspective for you. This is a must read for all who think they have a great functioning intellect. You might be surprised and learn something. - Kriti M (June 2011)

Without the cloy of drama, and with a clear, steady voice, Pandora Poikilos has been writing about her journey through life in the face of daunting challenges. It's been a pleasure to showcase and learn about this writer, and if you'd enjoy a graceful author who's worked her way out of the chaos and frailty of the human condition, I think you won't need to look any farther. - Obscure Writer (May 2011)

Summary of the fiction novel is as follows, "Anya Michaels is having the time of her life. She has the man of her dreams by her side. She has graduated at the top of her class. She has the job that so many others were lining up for. Between late night drinks at her favourite bar, fancy dinners at some of the most expensive restaurants, she has a string of friends who adore her. And then everything changes when she hears the dreaded words, "You are sick." Diagnosed with a rare neurological disorder, her world starts to fall apart, one piece at a time. At the very same time, she gets dumped. Her four year relationship is now nothing but a memory filled with pictures, thoughts and a very broken heart. Her job becomes an even further challenge as she tries to hide her condition from them. Her friends suddenly have more important things to do, what is a party without a party girl? Perfect could not crumble any faster. Soon, caught between situations, people and pieces of life that she is never dreamed of planning for herself, Anya begins to wonder if her brain condition is all that bad. As she absorbs the changes in her life and realisation sets in, she begins to wonder if she is the only one saying - Excuse Me, My Brains Have Stepped Out or are there others with the similar issues?"

Pandora Poikilos has been writing for more than 10 years for various media which include newspapers, radio, television and various websites. A social media enthusiast who is passionate about blogging and finding her way around the virtual world, she wills away time in the real world by reading, writing and people watching.

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