Lennox-Gastaut Syndrome Awareness Day to Kick Off Epilepsy Awareness Month

Lennox-Gastaut Syndrome Awareness Day Logo

November 1st is the annual worldwide observance of Lennox- Gastaut Syndrome (LGS), a rare and severe form of epilepsy. This weekend, the LGS Foundation, the leading organization in the world dedicated to Lennox-Gastaut Syndrome, is hosting their signature awareness event in advance of epilepsy awareness month and LGS awareness day. The event is being held on Saturday, October 29th at the Port Discovery Children’s Museum in Baltimore, MD. The family-friendly event will follow a superhero theme in light of Halloween weekend as the Foundation recognizes real life LGS “superheroes” within the United States.

“Lennox-Gastaut Syndrome is rare and debilitating, so initiatives that increase public awareness and bring LGS families together are extremely important to our mission,” explains LGS Foundation’s President, Melanie Huntley. “This weekend, we will honor the superheroes that are living with Lennox-Gastaut Syndrome and their families.”

In addition to this weekend’s event in Baltimore, there are dozens of other events and educational conferences being held around the world. Family conferences on LGS have been organized by the LGS Foundation’s partner organizations in Milan, Italy and Mexico City over the next month, and a variety of regional awareness events are taking place throughout the United States.  International LGS Awareness Day Event has been graciously sponsored by Eisai Inc. and Lundbeck.

“We are honored to join the LGS Foundation in helping raise awareness for this rare condition,” said Tim Clark, Senior Director, Government Affairs, Policy and Corporate Advocacy, Eisai Inc. “Through our human health care mission, we are dedicated to helping improve the lives of those in the epilepsy community. As part of that commitment, we are proud to support this special day to help provide resources, support and critical information to patients living with LGS and their families.”

“LGS Awareness Day is a time to stop and recognize all of the incredible work that’s being done in the LGS community to support the families who are living with this challenging seizure disorder,” said Lorena Di Carlo, Vice President & General Manager, Neurology, at Lundbeck. “As part of Lundbeck’s long-term commitment to the epilepsy community, we are truly honored to support this observance and the LGS Foundation’s awareness event again this year.”

The LGS Foundation is also engaging LGS families from around the world to participate in Lennox-Gastaut Syndrome through social media using the hashtag #lgsawareness and changing their profile picture to the LGS awareness day frame.

About Lennox-Gastaut Syndrome

Lennox-Gastaut Syndrome is a rare and severe form of childhood-onset epilepsy. The syndrome is usually diagnosed before the age of 8 years old and is characterized by frequent, uncontrolled seizures, multiple seizure types, a resistance to medication and/or therapies, and intellectual disability. In the United States, it is estimated that less than 50,000 people are affected.

For more information on Lennox-Gastaut Syndrome or LGS Awareness Day, please visit www.lgsfoundation.org/lgsaware.

Source: LGS Foundation


Categories: Non Profit, Healthcare, Chronic Diseases

Tags: Eisai, Epilepsy, Lennox-Gastaut Syndrome, LGS Foundation, Lundbeck, Superhero

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