Getting Treatment Options to Rare Disease Patients Faster: Putting Patients First in Clinical Trials, New Webinar Hosted by Xtalks

Xtalks Life Science Webinars

​The theme for Rare Disease Day, February 28, 2018 is “research.” In clinical research, the relationship between patient and researcher is symbiotic - the patient community needs researchers for cures and treatments and researchers need patients to participate to ensure meaningful outcomes. With rare disease, this relationship is intensified on both sides: patients and their caregivers often have few treatment options while researchers have a smaller pool of potential participants.

Join us on Rare Disease Day as experts from Medpace, a global clinical research organization, and Cincinnati Children’s Hospital Medical Center discuss how patient-focused clinical trial design and collaborative approaches to site enrollment can accelerate clinical research.

Attendees of this webinar will also hear from a parent of a child with Duchenne’s Muscular Dystrophy (DMD) to understand the impact of research on her family, what it means to be an advocate, as well as the personal challenges.

Key topics include:

  • Bespoke trial design – like the rare disease itself, each trial demands unique customization. We’ll discuss the considerations, challenges, and strategies that work
  • Putting the patient first – Patient-centricity is more than a buzzword. How early planning, open communication, and well-executed operations can drive success for patients and researchers
  • Optimizing patient recruitment to accelerate research today – and trends for tomorrow
  • CRO and site collaboration – best practices
  • A Family’s Story – A parent’s personal experience navigating clinical research for her son with DMD—What she’s learned as well as advice for both researchers and parents

Featured Presenters:

  • Michelle Petersen, MS, Sr. Associate Director, Clinical Trial Management, Medpace
  • John Lynn Jefferies, MD, MPH, FACC, FAHA, FHFSA, Director, Advanced Heart Failure and Cardiomyopathy Programs, Cincinnati Children’s Hospital Medical Center, University of Cincinnati
  • Beth Woelfel Harvey, Executive Director, JB’s Keys to DMD, Mother of child with Duchenne Muscular Dystrophy

For more information about this complimentary event, visit: Getting Treatment Options to Rare Disease Patients Faster: Putting Patients First in Clinical Trials

ABOUT XTALKS

Xtalks, powered by Honeycomb Worldwide Inc., is a leading provider of educational webinars to the global life science, food and medical device community. Every year thousands of industry practitioners (from life science, food and medical device companies, private & academic research institutions, healthcare centers, etc.) turn to Xtalks for access to quality content. Xtalks helps Life Science professionals stay current with industry developments, trends and regulations. Xtalks webinars also provide perspectives on key issues from top industry thought leaders and service providers.

To learn more about Xtalks visit http://xtalks.com

For information about hosting a webinar visit http://xtalks.com/sponsorship.ashx

Contact:

Nima Rajan

Tel: +1 (416) 977-6555 ext 352

Email: nrajan@xtalks.com

Source: Xtalks


Categories: Pharmaceuticals and Biotech, Healthcare and Medical Informatics, Medical Research, Pediatrics

Tags: clinical research, clinical site management, clinical trials, Medpace, patient enrollment, rare disease, Xtalks


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Xtalks is a leading provider of educational webinars to the global life science, food and medical device community.