A best-selling e-book by Trisomy 18 mom Sheryl Crosier is available in print from AllStarPress.com, a Tarpon Springs, FL firm. A portion of proceeds from every sale go to SOFT, Support Organization for Trisomy 18, 13 and Related Disorders.
The medical community said that Simon Dominic Crosier was "incompatible with life" but his family refused to accept that diagnosis. "I Am Not a Syndrome - My Name is Simon" is the truly inspirational story of a baby diagnosed with Trisomy 18, a genetic disorder in which a person has a third copy of material from chromosome 18.
Author Sheryl Crosier's book was first released as in e-book in late August and immediately was ranked very highly on book seller sites such as Amazon.com, where it placed as high as #2 under the Pregnancy & Childbirth section.
Released in paperback for the first time by independent book publisher All Star Press, "I Am Not a Syndrome - My Name is Simon" details the struggle of Sheryl's son Simon from the early stages of pregnancy to his life here on earth.
During this arduous time, Sheryl confronts a sometimes difficult and indifferent medical system to advocate on Simon's behalf. This is a moving and gripping story with a strong pro-life message.
"I longed to tell Simon's story of hope, faith, love and the peace which God granted me," explained Sheryl. "I wrote this book to demonstrate that our children are not a label and are not defects! They have a name and identity. They are children of God."
Born on September 7, 2010, in St. Louis, Missouri, Simon was diagnosed with Trisomy 18 and lived for three memorable months. Despite his disabilities, Simon had a huge impact on all who came into contact with him. The book is about Simon's short and meaningful life, his family and his wonderful caregivers. "I Am Not a Syndrome - My Name is Simon" documents the family's battle to advocate on behalf of their precious son.
"Struggling with the fragility of Simon's life was one thing. However, struggling with the popular pragmatic culture that measures human life in terms of dollars rather than dignity, is quite another. Yet, all along the way, again and again, Sheryl and Scott discovered and were made disciples of 'Life.' This story celebrates both the pain and the joy of love!" stated Rev. Robert J. Hermann, Bishop Emeritus in Residence, St. Louis Archdiocese of St. Louis.
The Crosier family had to overcome challenges put in their way by medical professionals and even extended family members who never valued Simon's fragile existence the way they did. Author Sheryl Crosier's hope is that this story will help motivate health-care professionals and anyone else that reads this account. The lives of children, regardless of their diagnosis, possess inherent dignity and value, and they deserve the best care our advanced country has to offer.
"Numerous times I would say to medical professionals that we want Simon, special needs and all," explained Sheryl. "But then we would hear callus responses such as 'incompatible with life' and 'failure to thrive' and 'not for Simon.'"
"I Am Not a Syndrome - My Name is Simon" is now available from publisher All Star Press - Books that Change Lives, a publishing firm based out of Tarpon Springs, Florida. It is offered in all online e-book formats and in paperback form from the publisher's website, AllStarPress.com. A portion of proceeds from every sale of this book will go to SOFT, Support Organization for Trisomy 18, 13 and Related Disorders.